I have been married to my husband Russ, who is a teacher and a pastor, for 37 years. We have three adult sons, a daughter-in-law, and two grandsons. My middle son, Ben, was born 32 years ago. At birth, everything seemed fine. We began to notice changes at two weeks of age, and then he began missing developmental milestones. He was diagnosed with developmental delays at 6 months and later with a rare neurological disorder. As parents, we were swept up in the mirage of doctor visits, therapy evaluations, and the special care needed. I remember feeling overwhelmed with the abundance of medical information being thrown at us and the lack of support for caregivers available at that time. There were a few services available, however, no one informed us about them. Now, there are a number of disability consulting services available, but in my encounters with parents, I find that not much information is provided at an early age. Sometimes, if you don't apply for transition services for disabilities when you first learn about the long-range effects of your child's condition, your child could end up on a waiting list for years beyond their teens. Through the many years with Ben, I have learned how to navigate the disability services available and the necessary transition training. If you have a child or know someone who needs information or training in these areas, please message me. I would love to speak with them.